Welcome back to the latest edition of
Pathways, the Hydrocephalus Association's monthly
e-newsletter. Summer is on its way out the door
and we welcome autumn, always an exciting time
here at the HA. For this is the season of WALK. We
would like to take the time to thank our
courageous and resourceful WALK Chairs for all
that they do for us, the community of people
living and dealing with hydrocephalus. They are
all volunteers, impassioned and empowered to make
a difference either for themselves or for their
loved ones.
This month we discuss issues in transition,
where we are at in our research agenda and one
woman's triumph over NPH.
With kind regards,
The team at
the Hydrocephalus
Association |
| Hydrocephalus
in the News |
|
Peter Yarrow of the famous folk trio Peter,
Paul and Mary and author of the illustrated book
"Puff the Magic Dragon" will be providing an
afternoon of music to benefit the Hydrocephalus
Association. The family friendly event will be
held on October 24th on the beautiful grounds of
the Australian Embassy in Washington, DC. The
concert will go from 2:30 to 4:00 p.m. and be
followed by a private reception. Proceeds from the
event will go to the Hydrocephalus Association
Research Initiative.
The HA is proud to join such a powerful voice
of compassion and advocacy. Mr.
Yarrow's voice helped to frame such civil
rights anthems as "Blowing in the Wind" and "If I
Had a Hammer". He is also the founder of Operation
Respect, whose free "Don't Laugh at Me Program" is
being used in over 22,000 elementary schools
throughout the United States.
|
 Transition in
Hydrocephalus
Director of Support & Education, Pip
Marks addresses one of the many complex issues
surrounding transition and parenting. This is the
critical, emotional and sometimes very difficult
task of helping children with hydrocephalus to
take control of their lives and empower them to
foster their own
independence. |
|
Please visit our conference photo
albums to see the many beautiful and vibrant
faces of our community.
|
As anyone familiar with NPH can tell you,
diagnosis is the first and sometimes most
difficult hurdle. Some people go years before
receiving a correct diagnosis.
Read
about one woman's successful diagnosis and
treatment for NPH and the difference it made in
her life and the lives of her loved
ones. |
| On
the Research Front |
 Research Agenda on
Track
"The review process (for the 2010 group of
Mentored Young Investigators) is moving ahead,"
says HA Research Associate Eleanor Young.
This is great news! As mentioned in our last
edition of Pathways, we expect to have results for
the next round of MYI awards available towards the
end of the year. Keep your eyes peeled for
upcoming
news. |
| Advocacy
at a Glance |
September is National
Hydrocephalus Awareness Month
September first
once again marks the beginning of the second
National Hydrocephalus Awareness Month. In July of
2009 the House of Representatives passed
Resolution 373, bringing hydrocephalus awareness
to the national stage.
This is an
opportunity for the individual members of our
community to step up and help spread awareness at
a grassroots level. Talk to one person a day, or
five or twenty. Ask them what they know about
hydrocephalus and when they say "Nothing," tell
them what you know.
Awareness is the
bedrock of
change. |
