| Donor
and Fundraising Updates |
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Storms and falling trees did
nothing to dampen the spirits of San Francisco
WALKers. In fact, WALKers from across
California, Wisconsin, Texas, North Carolina, New
Jersey and New Mexico made October a rousing
success as more than a thousand people came
together in their communities to make their voices
heard.
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| WALK Tip of the
Month |
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HA's Director of Special
Events Randi Corey gives tips on how to organize a
WALK Event.
This Month:
5 Reasons to
Register Early for a
WALK |
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Welcome to a November edition of Pathways,
the Hydrocephalus Association's monthly
e-newsletter.
The last couple of years have seen a great
deal of change here at the HA and October 2010 was
no different. Exciting things are afoot as we
launched two major efforts this last month. The
Hydrocephalus Resource Library as
well as our Teens Take
Charge initiative.
The Hydrocephalus Resource Library is a new
tool on our website that allows members
to get the best answers we have available
about hydrocephalus. It's an organic, growing
database where you can access medical papers,
articles or simple bits of information about
hydrocephalus. Teens Take Charge is an
effort to expand advocacy for hydrocephalus and
empower a new generation of people living with
hydrocephalus to take charge of their
future.
In this issue we also discuss: our
new contest to find next year's WALK logo;
information on headaches and hydrocephalus; the
Peter Yarrow (of Peter, Paul and
Mary) concert to raise funds for research;
how membership in the HA has been re-defined; and
so much more...
With warm regards,
The team at
the Hydrocephalus
Association |
| Advocacy
at a Glance |
 On October 18th, 2010 the
Hydrocephalus Association launched its new Teens
Take Charge Initiative. This is a call to
action for teens living with hydrocephalus to take
an active part in creating the advocacy that will
be decisive in finding a cure one
day.
Teens
are invited to speak out and share their stories
as well as to participate in creating the first
ever teen advocacy group in Washington, DC during
the 12th Annual Conference on
Hydrocephalus.
Read what
some teens have already had to say:
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| Hydrocephalus
in the News |
|
 The Hydrocephalus
Association's Support and Education staff are
constantly finding the latest and/or greatest
pieces of information on hydrocephalus to pass on
to our community. The result is, after more
than 25 years, we have researched and collected a
rich library of literature about hydrocephalus
which we pass along as questions arise and people
contact us for the answers. But there are
only so many of us and there are only so many
hours in a day, and the need for knowledge never
sleeps for our community. This is why we have
created the 'Hydrocephalus Resource Library', a
living, growing database of information about
hydrocephalus available to you any time.
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WALK Logo Contest
The
Hydrocephalus Association is looking for the
design of its next WALK logo. Will your
design appear on thousands of t-shirts across the
land next year? The contest is on and we will
be accepting submissions through the middle of
December.
Read on for information and
guidelines. |
|
 An Afternoon of
Magic
Peter
Yarrow's Concert for Hydrocephalus Research was a
delightful hit. Mr. Yarrow, the talented
Peter of Peter, Paul and Mary fame was both
affable and entertaining. The sheer
genuineness of the man and his concern for worthy
causes shone through, as did his
talent.
The
event was a rousing success that raised over
$22 thousand dollars to directly fund
hydrocephalus
research. |
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The Hydrocephalus Association has
experienced more than its fair share of change.
David Moore, Hydrocephalus Association Director of
Development describes our new philosophy and
approach to the traditional 'HA
Membership'.
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 As anybody familiar with
hydrocephalus can tell you, headaches are one of
the major ongoing problems associated with
hydrocephalus for children and young adults.
The Hydrocephalus Association Support and
Education Department has helpful information to
share about headaches, their causes and what you
can do about
them. |
On November 16th the Alzheimer's Foundation
of America (AFA) is sponsoring National Memory
Screening Day. If you or a loved one are
currently living with NPH, or suspect that you
might be, we recommend taking advantage of this
opportunity to explore their screening
process. |
| On the Research
Front |
|
Research Update
 Hydrocephalus Association
Research Associate Eleanor Young gives a full
rundown of the status of the latest round of
Mentored Young Investigator (MYI) awards. The
decision is slated to take place in November,
which means you should stay tuned for the December
issue when we will be announcing the newest group
of
awardees.
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