HA Partners Network:

We have recently strengthened our approach to creating a nationwide network of support by creating our HA Partners Network.  These partners provide support and various selfless services at the local, community level. 

Our goal is to build the Partners Network with like-minded people around the country who share our commitment to integrity, quality and responsiveness. We welcome your feedback or inquiries about joining the ranks of our Partners.

 

Arizona

Hydrocephalus Association - Phoenix Arizona Partner
Provide support for all age groups. Hold regular group meetings.
Margaret.Varland@CHW.EDU or (602) 406-7585
                                                     For info on WALK 2010.

California

Oroville/Chico Hydrocephalus Support Group
for all ages and stages affected by hydrocephalus.
lawrence1988@sbcglobal.net

California

A support support group located in Tracy, CA:  

Colorado

Support Group located in Denver, CO.  To contact please go to:  neilknight592@comcast.net.

Florida

Hydrocephalus Association – Tampa Bay Partner
Provide support for all age groups. Hold regular support group meetings. 
tampabayfl@hydroassoc.org or (727) 637-5585

Georgia

Atlanta, GA area support group: Kymmi03@gmail.com

Illinois

Chicago Hydrocephalus Support Group
Open to all ages and stages affected by hydrocephalus.
sherryiab@yahoo.com or  www.chicagohydro.org/index.html

Iowa

Iowa Support and Advicacy Group in Cedar Rapids, IA
Contact Rachel Buresh at:  319-551-2960 or email: iahydrocephalus.support@gmail.com

Maryland

Baltimore Hydrocephalus Community Support Group
Quarterly meetings for pediatrics, young and older adults living with hydrocephalus and their families.
Contact Tiffany Schaller at 410-601-1905 or Faith Muigai at 410-601-6490

MichiganDetroit Hydrocephalus Support Group
Open to all age groups.
Contact Jenn Bechard at: jenn.bechard@gmail.com

Missouri

Hydrocephalus Association - St. Louis Missouri Partner
Provides support for all age groups. Holds periodic meetings and annual day long conference.
stlouismo@hydroassoc.org or (314) 662-4384

New Jersey

North NJ Hydrocephalus Support Group, located in Morristown.
Open to all individuals and families affected by hydrocephalus.
northnjhydrogroup@yahoo.com or northnjhydrocephalussupport.com/

New York

Long Island, NY support group.  Please email them at:  padron117@aol.com.

Pennsylvania

Parent Hydrocephalus Support Groups in Pittsburgh and Philadelphia - for families of children living with hydrocephalus.
For Pittsburgh nsnyder0602@yahoo.com               
For Philadelphia annie.markovits@tenethealth.com

Ohio

Hydrocephalus Association - Northeast Ohio Partner
Provide support for all age groups. Hold regular support group meetings.
NEOhio@hydroassoc.org or (216) 466-1827

OklahomaOwasso, OK hydrocephalus support group.  Contact Tina Daniels tina_daniels@ymail.com (918) 694-9212

Oregon

Portland, OR NPH Support Group
chent@go.oes.edu

Texas

Austin, TX has two support groups. For Pediatric support, please contact:  meredith.weiss@gmail.com.  For NPH support, contact: stephens60@sbcglobal.net

Utah

Salt Lake City Hydrocephalus Support Group for Parents
A parent support group for families of children living with hydrocephalus. Quarterly support group meetings.
pc-hpsg@imail.org

Washington

Support Group located in Seattle, WA area.  Please contact them at:  ette@u.washington.edu