The HA's Mission is to: 'Eliminate the challenges of hydrocephalus'
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The CEO's Corner
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In the last year, we have talked a lot about the need for more research on hydrocephalus and the work of the association to raise money and provide funding for that research. In this month's blog, HA CEO Dawn Mancuso reviews our progress to date and highlights a meeting at the National Institutes for Health that focused on the current state of hydrocephalus research and funding for that research.
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Support and Education Update
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October was National Bullying Prevention Month and we dedicated a blog to providing parents and youth with the resources they need to tackle this important issue. This powerful blog has stories of bullying from our own community and talks about the changing landscape of bullying from school hallways to the internet.
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We recently asked on our Facebook page: Did you know that papilledema and vision loss can occur due to increased intracranial pressure? 82% of those who answered said yes they knew about this issue. We explore papilledema further and provide informational resources.
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A Survey for Parents of Special Needs Children
Parents of children with special needs are asked to participate in an online, anonymous survey about advocacy and resilience in parents of children with special needs. The research is being conducted by Dr. Sarah Taylor at California State University, East Bay, and Dr. Amy Conley Wright at San Francisco State University.
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Development Update
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Join the Professional Member Society
The Hydrocephalus Association invites members of the medical and research community to join the Professional Member Society today. As a member, you will demonstrate your commitment to HA's mission and the thousands of families that we serve. To join, simply click the below link or call 301-202-3811 ext. 17 and we will complete your membership over the phone.
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As the season of giving approaches, the Hydrocephalus Association will launch an eight week series entitled, So Many Reasons to be Thankful... So Many Ways to Give, to encourage members to include HA in their holiday gift plans. We will feature gift ideas that will help to further our mission and share a few remarkable "why I give" stories of members in the community that have supported the Association over the years. We are so very THANKFUL to all who have supported our efforts and continue to do so throughout the year.
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Research Update
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Dr. Jay Wellons, HCRN Investigator, Receives Degree and Takes New Position at Vanderbilt
Dr. Jay Wellons has joined the Vanderbilt University staff as a Professor of Neurosurgery at Vanderbilt University Medical Center and the Chief of Pediatric Neurosurgery at the Monroe Carell Jr. Children's Hospital. This follows the conferring of his MSPH degree by the University of Alabama, Birmingham. While in Birmingham, Dr. Wellons oversaw the Birmingham HCRN site and was the Principal Investigator on the line of studies on hydrocephalus due to intraventricular hemorrhage in premature babies.
HA would like to congratulate Dr. Wellons on his completing his degree and on his move.
Read the HCRN Press Releases
HCRN Investigator Wellons Moves to Nashville
Kudos Dr Wellons
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Dr. Curtis Rozzelle Joins HCRN
Dr. Curtis Rozzelle joins the Hydrocephalus Clinical Research Network. He will oversee the participation of Birmingham Children's Hospital. Dr. Rozzelle has published randomized clinical trials in hydrocephalus and we look forward to working with him on future HCRN studies.
Read the HCRN Press Release
Dr Curtis Rozzelle Joins HCRN as New PI
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Advocacy and Awareness Update |
We are so pleased and honored to announce a new scholarship available through the Hydrocephalus Association's Teens Take Charge Program (TTC). Through a generous grant from the Medtronic Foundation, the Hydrocephalus Association (HA) has awarded five scholarships, in the amount of $1,000, to teens and young adults (ages 17 to 25) who are affected by hydrocephalus.
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As Simple as a WALK Around the Block
As you may know, WALKs and Special Events are one of the Hydrocephalus Association's (HA) primary revenue sources, raising 60% of HA's total annual revenue in 2011. HA currently has 32 WALKs across the U.S. You say you don't have a local HA WALK? Take a walk through your neighborhood and raise awareness and funds through our Virtual WALK program!
Be a Virtual Walker
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Hydrocephalus in the News - Raising Awareness
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Seattle Children's Hospital details the successful surgical procedure, Choroid Plexus Cauterization (CPC), performed by Dr. Samuel Browd, pediatric neurosurgeon and Director of Hydrocephalus at Seattle Children's Hospital, on Skyler Crow now 10 months old.
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University of Tennessee Alumna Raises Awareness for Chattanooga WALK
Chara Crowley McLaughen, a University of Tennessee (UTC) alumna, is highighted by her alma mater UTC Chattanooga, for her dedication to organizing the 2nd Annual Greater Chattanooga Hydrocephalus Association WALK 2012 which will take place at Coolidge Park on Saturday, October 27th.
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San Diego Ad Campaign Features Children with Special Needs
San Diego-based toy company Infantino is creating an ad campaign, called "Everybody Plays," featuring children with special needs. The children in the campaign have special needs including Down syndrome, Hydrocephalus, visual impairments and congenital heart defects.
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