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In This Issue
Donor and Fundraising Updates
WALK Tip of the Month
Hydrocephalus in the News
Research Update
Upcoming HA Events 
Donor and Fundraising Updates
Jenna Ellis, Co-Chair of the Detroit, WALK shares her views and experiences at the Veteran WALK Chair training seminar.  The training is part of an effort by the HA to make this year, 2011, the most successful WALK season ever.

WALK Tip of the Month

Randi Corey, HA Director of Special Events recaps about the importance of Family Teams and Letter Writing Campaigns in the success of our current WALK season.


This Month:
HA WALKs and Family Teams!

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 May 2011
Dear Thomas,

Welcome to May Everyone!

 

In this issue of Pathways we feature several articles made available by our Education & Support Staff through the Hydrocephalus Resource Library. They cover such topics as gait in NPH, shunt taps and an article on neurodevelopment.

 

Also, Jenna Ellis, HA WALK co-chair from Detroit, shares her experience at the Veteran WALK Chair Training held this last month; Rick Smith , Acting CEO, talks about the HA's recent re-certification by the National Health Council  (NHC) and Better Business Bureau (BBB) and we share news about the Hydrocephalus Clinical Research Network and a Board Member update

As always, we offer the Hydrocephalus WALK Tip of the Month and invite you to check our upcoming WALKs and Support Group meetings.

With warm regards,

The team at the Hydrocephalus Association

Hydrocephalus in the News
Rick Smith, Acting HA CEO

From the CEO: Hydrocephalus

Association Certification Renewed


Rick Smith, Acting CEO of the Hydrocephalus Association, reports that the Association has once again met all 41 Standards of Excellence required by the National Health Council, and has received re-certification for its compliance with those standards. 

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Hydrocephalus Association Board Member David Browdy has been appointed the Chief Operating Officer (COO) of the Feinberg School of Medicine at Northwestern University.

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Neurodevelopment of Children and Teens with Hydrocephalus 

 

This excellent article by Jay Wellons, MD and David Nilsson, PhD, titled 'Neurodevelopment of Children and Teens with Hydrocephalus', discusses the neurological development of children and teenagers who have hydrocephalus, and the challenges they face.  Learn about other resources and articles which can be found in the Hydrocephalus Resource Library along with many other resources dealing with this topic .

 

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HA Director of Support & Education, Pip Marks discusses the importance of maintaining a copy of your personal medical record.  Having your records easily accessible in the event of an emergency is a critical step towards managing your health in the face of a chronic condition such as hydrocephalus.

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As many people in our community can attest, shunt malfunctions can be difficult to diagnose.  Doctors use many tools to overcome these difficulties and provide treatment.  One of them is called a Shunt Tap.  For other articles relating to tests for shunt malfunction, please visit our Hydrocephalus Resource Library on our website

 

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One of the ways in which NPH is diagnosed is the characteristic Gait associated with it.

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On the Research Front
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HCRN Holds Semi-Annual Meeting 

 

The Hydrocephalus Clinical Research Network recently held a meeting to discuss current research projects and create new strategies for hydrocephalus research.   

 

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