Dear Thomas,
Welcome to the June edition of Pathways!
We would like to take the time to apologize for the lateness of this edition of Pathways. We experienced some technical challenges this month, which led to many delays in publication. We thank you for your patience and are happy to finally get this edition into your hands.
In this edition we are highlighting some exciting news. We are very happy to announce that we are taking applications for the next (3rd) round of research grants. This round will target more experienced researchers and concentrate on expanding our knowledge of the Cerebral Spinal Fluid (CSF) dynamics.
In other news, hydrocephalus awareness is taking leaps forward and has been featured on ABC's Grey's Anatomy for the third time and TeamHYDRO is once again heading to San Francisco Bay to raise money and awareness. Guest bloggers David Carl and Debbi Buffa share insight on communication and travel for people with hydrocephalus; on a sad note, the entire hydrocephalus community mourns the loss of Salomon Hakim, a true giant in the realm of hydrocephalus treatment and research.
With warm regards, The Team at the Hydrocephalus Association
|
Hydrocephalus in the News |
|
Hydrocephalus Support, Education and Fun at the Children's Hospital and Research Center in Oakland, CA
The Hydrocephalus Association was represented by Karima Roumila and Jordan Faigen at the Oakland Children's Hospital annual Hydrocephalus Festival. Many patients and their families from all over Northern California gathered together to share in their common struggle with hydrocephalus.
Read More
|
As a result of the near fatal shooting that took place on January 8th, Congresswoman Giffords has received a permanent shunt to help cope with her injuries. We all wish her well.
Read More
|
David Carl, job coach and guest blogger has written an article giving tips and insight into the special nature of communication in the workplace for people with disabilities.
Read More
|
Once again, the HA is participating in the Combined Federal Campaign which allows federal employees to donate to the cause of their choice through their payroll.
Read More
|
Social Media Update
|
From Facebook:
FROM OUR PAGE ON FACEBOOK: We asked our community "If you are planning to travel this summer have you inquired about neurosurgeons in the area you are visiting, in case of an emergency?"
Related to this topic, Debbie Buffa, HA Board member, support group leader and mother of two daughters with hydrocephalus, wrote a wonderful blog sharing her experiences and knowledge on traveling while living with hydrocephalus.
Read More
|