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December 2011 
In This Issue
Donor and Fundraising Updates
Research Update
Education, Support and Advocacy
Hydrocephalus Teens Take Charge
Hydrocephalus in the News - Raising Awareness

 

The HA's Mission is to: 'Eliminate the challenges of hydrocephalus'  

 

 

Upcoming HA Events 
Donor and Fundraising Updates
ConferenceAttendees
2011 WALK Highlights!

The 2011 WALK season, our biggest and best season ever, has come to an end.  Jordan Faigen, our National Campaigns Manager, reflects on the triumphs of the season and the dedication of our volunteers.

 

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ConferenceAttendees
Research Update

HA Funds Research, Announces New Research Grants 

  

ConferenceAttendeesWe are excited to announce our latest round of research grants.  This set of grants focuses on CSF production, flow and regulation and is a distinct and powerful step forward in our research agenda.  

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Education, Support and Advocacy
Hydrocephalus Association Support Group
Partners, Pt. 1

  

HA currently has 28 support groups throughout the United States. As part of an ongoing series, we would like to introduce you to a few of our very special support group leaders who volunteer their time to help others in need and spread awareness.

 

 

ConferenceAttendeesRe-printed by permission of Neurology Now, this article by Gina Shaw, gives valuable information on 'Health Insurance Exchanges.'

 

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Results of Our Facebook Post: "What caused your hydrocephalus?  

 

fblink Through Facebook, we posed a simple question: 'What caused your hydrocephalus?' Subsequently, we received many answers from our community. In response to this, we shared information on the key terms used to classify hydrocephalus, as well as provided a list of available resources.

 

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A Word from Our Summer Intern Tessa  

 

tessaOver the course of the summer, HA was privileged to enjoy the services of our intern Tessa.  Tessa is a remarkable young woman who made a very positive impact on our office and, by extension, the hydrocephalus community.  

 

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Hydrocephalus Teens Take Charge
ConferenceAttendeesAshley Takes Charge of Her Hydrocephalus


Ashley, a member of the TTC Advisory Council, gives useful advice to her peers on how to create and foster a positive attitude in the face of hydrocephalus.
 

 

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Elijah Speaks Up About Hydrocephalus!  


TTC Advisory Council member Elijah Lawrence shares his experience with hydrocephalus and the philosophy that lets him live his dreams.  

 

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Kashawn Takes Charge of His Hydrocephalus!  


After being diagnosed with hydrocephalus on Columbus Day 2011, Kashawn is determined to spread awareness through TTC.  

 

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Brady's Dream  


Megan Rivkin, a TTC Adviser, along with her friends, raise money with glow in the dark bracelets in honor of her brother Brady.

 

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Hydrocephalus in the News - Raising Awarness
Boca Raton Youth Interviewed by Local ABC Affiliate

 

Alex Roger, of Boca Raton, FL, was interviewed by his local ABC affiliate about his hydrocephalus.

 

Read more   


The Ahwatukee Foothills News featured Mike and Mindy Weinstein. 

 

Read More

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