Dear Thomas,
Welcome to the latest edition of Pathways. We are pleased to announce this year's scholarships recipients, share the incredible story of a brave little girl named Hannah and re-introduce PACER - one of our go-to resources for parents of children with special needs. We also feature an update about acquiring insurance with a pre-existing condition and insight into an NIH forum for non-profits. With the end of summer in sight, our WALK season is getting ready to kick into overdrive during the fall months. HA Director of Special Events Randi Corey shares her latest WALK Tip and explains the exciting concept of hydrocephalus 'Virtual' WALK. With warm regards, The team at the Hydrocephalus Association
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Hydrocephalus in the News |
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The first of a series called 'A Million Hydrocephalus Stories', HA Member Susan Andersen Moore shares the story of her daughter Hannah and her struggles and triumphs.
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PACER - A Great Parent Resource
PACER Center is a great resource for families of children with special needs. As a parent training and information center, they offer workshops, publications and many other useful resources dealing with the challenges of raising a child with unique requirements.
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Many of us deal with the complexities of hydrocephalus and the intricacies of health insurance; we'd like to inform you about a timely and informative article concerning recent changes to the Affordable Care Act (ACA) and Pre-Existing Condition Insurance Plans (PCIP).Read More
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Paul Gross, the Chairman of HA's Board of Directors, recently attended the National Institute of Health / National Institute of Neurological Disorders and Strokes nonprofit forum. He wrote about his experiences and insights in a special blog post. Read More
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On the Research Front |
Hydrocephalus Clinical Research Network Publishes Findings The Hydrocephalus Clinical Research Network (HCRN) is making a difference in the world of hydrocephalus. They recently published a paper showing that standardized treatments can significantly lower infection rates for hydrocephalus. Read More |