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In This Issue
Donor and Fundraising Updates
WALK Tip of the Month
Hydrocephalus in the News
Research Update
Upcoming HA Events 
Donor and Fundraising Updates

The Hydrocephalus Association has initiated a Virtual WALK program to allow members, who are unable to physically attend a WALK, to participate. WALKS are about more than raising money. They are also about building and maintaining our sense of community. Virtual Walk is one more way to do that.   

 

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WALK Tip of the Month

Are you unable to attend a Hydrocephalus WALK for some reason? Have no fear. In her latest WALK Tip of the Month, Randi Corey, HA Director of Special Events gives a detailed explanation of our new Virtual WALK Program which makes participation available to everybody.

  


This Month:
Hydrocephalus Association Virtual WALK Program.

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August 2011
Dear Thomas,

Welcome to the latest edition of Pathways.  We  are pleased to announce this year's scholarships recipients, share the incredible story of a brave little girl named Hannah and re-introduce PACER - one of our go-to resources for parents of children with special needs.  We also feature an update about acquiring insurance with a pre-existing condition and insight into an NIH forum for non-profits.

With the end of summer in sight, our WALK season is getting ready to kick into overdrive during the fall months. HA Director of Special Events Randi Corey shares her latest WALK Tip and explains the exciting concept of hydrocephalus 'Virtual' WALK.

With warm regards,

The team at the Hydrocephalus Association

 
Hydrocephalus in the News
Announcing the 2011 Hydrocephalus Association Scholarship Awardees

 

scholarshipsWe are so happy and excited to present to our community the nine inspiring 2011 scholarship recipients. We invite you to read about these young adults and learn about their courage, struggles, and dreams. 

 

 

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hannahThe first of a series called 'A Million Hydrocephalus Stories', HA Member Susan Andersen Moore shares the story of her daughter Hannah and her struggles and triumphs.

PACER - A Great Parent Resource 


pacer center logo PACER Center is a great resource for families of children with special needs. As a parent training and information center, they offer workshops, publications and many other useful resources dealing with the challenges of raising a child with unique requirements.

 

 

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Many of us deal with the complexities of hydrocephalus and the intricacies of health insurance; we'd like to inform you about a timely and informative article concerning recent changes to the Affordable Care Act (ACA) and Pre-Existing Condition Insurance Plans (PCIP).


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Paul Gross, the Chairman of HA's Board of Directors, recently attended the National Institute of Health / National Institute of Neurological Disorders and Strokes nonprofit forum. He wrote about his experiences and insights in a special blog post.

 

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On the Research Front
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Hydrocephalus Clinical Research Network Publishes Findings 

 

The Hydrocephalus Clinical Research Network (HCRN) is making a difference in the world of hydrocephalus. They recently published a paper showing that standardized treatments can significantly lower infection rates for hydrocephalus.

 

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