Hydrocephalus Association eNewsletter | JuLY 2018

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FEATURED ARTICLES

Watch Recorded Sessions from HACONNECT 2018!

Recordings of the 19 live streamed sessions are now available for all paid registrants! Not a registered attendee? Register as a virtual attendee for $20 to access the recordings!

Save The Date for HACONNECT 2020!

We are excited to announce
that our 16th National Conference on Hydrocephalus will take place in Houston, Texas in June 2020.

Roadmap to A Cure is the Hydrocephalus Association's critical initiative to accelerate critical research, expant patient support and education, and raise unprecedented public awareness about hydrocephalus. Join us on our journey to raise $20M by 2020.

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UPCOMING EVENTS

7/14

St. Petersburg, FL Education Day

7/28

Colorado Community Network Meeting & WALK Kick Off

7/29

Sleep Away Camp for Kids with Hydrocephalus

8/04

Charlotte Community Network Summer Event

10/20

Colorado Community Network Meeting

OTHER STORIES

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Three-Year-Old Dean “The Machine” Becomes Team Captain of First Hydrocephalus Endurance Racecar!

HydroDad Bennett Wilson wanted a creative and fun way to raise awareness and funds for hydrocephalus research & programs, so he built a Hydrocephalus Racecar! Learn more about his racecar journey and how you can help support the Hydrocephalus Racing Team at their first race!

Half a Million Dollars Secured for Hydrocephalus Research

In 2015, HA supported Dr. Michael Piper with a $50,000 Innovator Award to study how ependymal cells develop. We are happy to report that this preliminary work recently resulted in Dr. Piper winning a $500,000 grant from the National Health and Medical Research Council of Australia.

New NOMOREBS PSA Now Available

Join the Hydrocephalus Association and New Girl’s Max Greenfield in saying NOMOREBS! It’s time to find a cure and alternative treatments!

WATCH VIDEO

Join our Birthday Challenge!

Earlier this summer, our intern, Emily Lawrence, who was born with hydrocephalus, launched a birthday fundraiser on Facebook and in one month, she was able to raise $750 for HA! Inspired by her passion and dedication, we decided to launch the Birthday Challenge!

Join a WALK to End Hydrocephalus Near You!

The WALK to End Hydrocephalus 2018 season has begun! The HA WALKs raise critical funds for hydrocephalus research, education, and support programs. Find your local WALK.

#NOMOREBS Campaign Gets Media Attention

Our #NoMoreBS multimedia campaign was featured in a recent news article in Everyday Health. The article offers an in-depth explanation about hydrocephalus and the reason why many living with the condition undergo multiple brain surgeries.

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Our mission is to promote a cure for hydrocephalus and improve the lives of those affected by the condition.

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